Quote:
Originally Posted by IBAL
My problem still is the effect that the old meds have on me. I am still taking 4 50/200 ER sinemet every day and they make my legs ache in the muscles. I can walk thanks to the DBS but I still have the feeling of dystonia still lurking.
I think food still effects me like before. I understand that DBS does not fix that.
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I'm about 8 weeks out (Surgery 10/26; battery 11/2; programming started 11/9). Brain swelling can come down, but have dropped to 1/3 of my medications. Too little or too much caused stiffness, so quite happy to be on three 25/100 during the day. One 50/200 ER at night.
Battery location (pec), cable on left side of my neck. Best medicine is a great Massage Therapist. I've always had Dystonia issues, but really helps to get those knots out.