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Old 12-27-2016, 12:03 PM
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
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Quote:
Originally Posted by bluesking View Post
That's really interesting. I will ask the Doc during the 'adjustment' appt.
if I can DEFINITELY still see a chiropractor. I also couldn't believe what I
was hearing when I brought it up previously.

Once again, food seems to be the biggest challenge. I have gone back and
forth, desperate to find a combo that works. After the last change to 2.5,
I seemed OK, not great, taking the single 23.75 in the morning as well as
one at night. I'm still trying to get back to that after 'falling off the wagon'
last week and reverting to 5 (total) per day. But, last week I did have a
legitimate excuse, my mother was near death, with severe dementia. They
explained to me that they can program out much if not most of tremor, but
when it comes to high stress scenarios like the above, there is just so much
they can do. That makes sense to me. And even then I was at less than a 1/3 of the regimen before DBS. So, no, I will NEVER complain about that, or anything else that is part of the DBS experience, so far.

If somehow I can make the total of 2 work again, I really think it could be
a key for eliminating the overall food complications. My reasoning is one
capsule early, say 8 or 8:30, and one at bedtime, should allow me to eat
starting at 9 and on throughout the day, as long as DBS is adequately
doing it's thing. And by the time I take the 2nd capsule as I get ready for
bed, I will hopefully be asleep before the other complications return.

I will be ready to try 3, then 4, soon if the 2 'plan' fails me. NO complaints
just curious how many grams of protein you ingest in 1 serving? if you have to have a continuous supply of l-dopa getting into your brain to be functional and can't depend on l-dopa being stored in the brain, then eating too much protein even with a DBS can negate the affect of the L-DOPA from your meds. those little amino acids from your ingested protein compete for entry into the blood with the L-DOPA from your rytary thru the small intestine, same competition getting past the BBB and those AAs from your food will overwhelm the l-dopa from your pills and eventually the l-dopa in your blood will be broken down. So maybe try taking an extra sinemet 25/100cr or 50/200CR an hour before eating or at the same time to give you some extra l-dopa? might not help since this isn't much L-DOPA but since it released fairly slowly might be less chance of dyskinesias if your're worried about that.
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