I just discovered this support group and am so happy to finally find a group. I am the caregiver for my husband who has Parkinson's disease and is also legally blind from macular degeneration and glaucoma. I have been caring for him alone for eight years and finally, two weeks ago, insisted I needed some help. We are very fortunate in having long term care insurance and so can afford to have someone in to help me. The insurance company sent out a nurse to do an assessment and determine how much help we were eligible for. She approved us for a home health aid for 24/7 and a homemaker 8 hours a week. My husband is very opposed to having help in the house but I have gotten him to agree to 4 hours two days a week. He is very unhappy about this arrangement and I, of course, feel guilty insisting.
Thanks for letting me vent