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Old 12-29-2016, 09:13 AM
Sophie0513 Sophie0513 is offline
Junior Member
 
Join Date: Nov 2016
Posts: 94
5 yr Member
Sophie0513 Sophie0513 is offline
Junior Member
 
Join Date: Nov 2016
Posts: 94
5 yr Member
Default Thank you Enbloc!

Quote:
Originally Posted by en bloc View Post
Just want to note that Elaine is correct about several things, but I think made a minor error in the list of initial testing. The levels tested are for 'antibodies', not auto-antibodies...and she is correct, they do include levels of IgA, IgM, IgE, and IgG (all four subclasses).

Sophie, you need to have the skin biopsy done to confirm the SFN (you don't say whether you had it or not...only that the doctor ordered it). I'd like to note that 25% of those with autoimmune disease also have immune deficiency, so this should be considered for you (testing for autoimmune disease).

If you do have SFN and found to also have an immune deficiency, then autoimmune testing should be done. IVIG can not only help the immune deficiency, but higher doses can help neuropathy (SFN) caused by autoimmune disease.

You should definitely keep this neurologist and complete the testing he ordered...but also see a hematologist or immunologist for the immune deficiency and maybe a rheumatologist if they suspect an autoimmune disease process.
Thank you for your help! My skin biopsy is scheduled for Jan 3 and based upon my symptoms I won't be surprised if it comes back positive. Also, thank you for providing me with direction regarding doctors. This alone just made my situation seem more manageable to me and for that I am grateful!
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