Quote:
Originally Posted by Healthgirl
I get this as well. The weight of my own body when I wake up causes so much pain from the pressure on my skin and deep through to my muscles and bones. I feel so weak and hurt so much like one would it they did 2 days of extreme fitness bootcamp, slept on a cold flat rock, and then caught the flu. The weakness is amazing. My arms and hands are so weak that I can't hold my cell phone above me to check emails. I try to shift into different positions but it's all awful so I wind up getting up to get through the horrible pain of moving to achieve the ability to function and get the little one ready for school. I have to be up and down constantly all day. Can't stand long, use my arms long, or be in any one position for more than 10-15 min. I feel that this is due to such poor oxygenation of the muscles and nerves. I also get the tingle and warmth in different areas of my body at times, more at night though. I get random shocks all over, but the ones in my hand happen almost anytime I try to hold my fingers straight.
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Ps I was just reading up and discovered a disease called Charcot-Marie-Tooth Disease - never heard of this before and it's inherited. My late parents both suffered from weakness and both died suddenly and prematurely so ill never know now if theirs might have been similar to mine. It does seem to describe these symptoms perfectly but I think it would show up in EMG by now as I've had this for six or seven years getting progressively worse. Still the idea begins it may be similar to ours?