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Originally Posted by MAT52
Ps I was just reading up and discovered a disease called Charcot-Marie-Tooth Disease - never heard of this before and it's inherited. My late parents both suffered from weakness and both died suddenly and prematurely so ill never know now if theirs might have been similar to mine. It does seem to describe these symptoms perfectly but I think it would show up in EMG by now as I've had this for six or seven years getting progressively worse. Still the idea begins it may be similar to ours?
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I think with CMT, you develop very high arch and curled hammer toes as the disease progresses, but this would probably have been noticed already in our twenties. It is not autoimmune, it's genetic. I think this is why the neurologists do the heel walk test to try to rule this out.