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Old 01-03-2017, 10:22 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by Healthgirl View Post
I think with CMT, you develop very high arch and curled hammer toes as the disease progresses, but this would probably have been noticed already in our twenties. It is not autoimmune, it's genetic. I think this is why the neurologists do the heel walk test to try to rule this out.
Oh yes - I've just got that far now with my research! My arches are high but not like that nor the clubbed hammer toes etc. My neuro tested heel toe abd said there was clumsiness but not concerningly so. Still maybe some of the neuro muscular mechanisms behind it are similar - only autoimmune? I'm just not scientific enough to be able to comprehend but have to instead rely on my Sherlock blood hound instincts when I focus in on symptoms!
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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