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Old 01-03-2017, 04:05 PM
LouLou1978 LouLou1978 is offline
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Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
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Quote:
Originally Posted by Healthgirl View Post
no trial of IVIG for me. Were you and your sister living together before or during the onset of symptoms? Hopefully they can run your genome soon. It took so long for my results to come back.
Hi Healthgirl. My sister spent alot of time at mine but didn't live here. So sorry if this is a silly question but if they run my genome this will rule out any genetic neuropathy? There are alot that they probably haven't even identified yet so would this be 100% that not genetic. I have held off so far with the ivig trial as symptoms are not bad enough for treatment yet.probably will have to wait 6 months to see this guy and then another to get results 😔
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