I know how you feel, I spent months searching for people diagnosed with Wartenbergs who were active on forums. I have posted here a couple of times ** There is lots that I would like to ask you and I think it would be mutually helpfull....not least, as you say, to know that you are not alone. I have sent friend requests to many previous posters and received no response...so don't know. Perhaps the disease just wears people out. Stay in touch** JOYL5