Hi Elaine, apologies for the long delay. I've been off Neurotalk all Christmas and New Year.
I don't know how to pursue testing. It's not readily offered here on the NHS. Was this covered by your insurance? I'm not sure where to begin as I understand the testing has numerous limitations. I can't afford to pay out significant amounts.
I mentioned ehlers danlos to my rheumy but she advised against pursuing it. I do value my new rheumys view point. I understand that testing for this is confusing and limited. I don't understand if and how genetically inherited disorders like CMT and EDS relate to autoimmunity. I have autoimmune problems outside of the Sfn.