Originally Posted by JoannaP79

I am writing alot about my atrophy issue so please bear with me. The overwhelming suggestion from the consultants I have seen is that it's unlikely my muscles are atrophying. En block, we have discussed this alot and I feel in my heart this must be happening based on what I see and feel. I'm in a major quandary as I'm being steered against it and more recently the Neuromuscular guy said there is all possibility it won't change anything as it may not be treatable. I feel I could still be in the wilderness so to speak even if it shows denervation (which is what I suspect). I am extremely worried about the pain of the of it. I'm hyper revved up to pain as it's a constant and I understand that the muscles can't be numbed, only the skin. He suggested a one inch incision which is better than some cases I've read about.
My neurologist mentioned Lipoatrophy, ie fat loss under the skin as a possible explanation. But it appears you cannot directly test this. I've read what I can about it. It can appear the same visually as atrophy from muscles. Can all these problems cause this. Does anyone else have fat loss to the extent it has changed the actual structure of parts of your body? I'm talking more than just appearing slimmer.

I'm going to stop going on about this eventually everyone. It's one of the most devastating aspects of this whole thing on a psychological level.