Pookie,

I just read your response - after I sent my message.

I am so sorry that you're going through all of this. If there was something that I could do- I hope knowing that there are MANY people who are also struggling with this disease helps a little. I agree with you that one of the hardest things is how it affects our children. My son went through a time where he thought he was causing my pain. It's soo very hard.

I do think that some counseling would be good for everyone. Just to clear the air a little bit. Is your husband willing to listen and participate in a support group? I do know that most churches have support groups - which might be an option.

Pookie, I am so sorry. I hope your RSD is atleast under control where the pain is tolerable. Please let us know how you're doing - even if you haveto e-mail us everyday to talk.