Quote:
Originally Posted by Snoel
I've been off Prednisone now since June 2016 and seemed to help a bit but I'm still struggling with short memory and searching for words when under stress, I'm now taking Mestinon 5 times a day, Timespan at bedtime, Imuran daily and IVIG every 3 weeks.
I'm more or less living a normal life but it's been a rocky road to adapt, I'm also back to work on a shorter schedule...
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Snoel,
We sound somewhat alike in our treatments. I take Mestinon 6 times a day, still on 10mg Predisone (getting off slowly) timespan at bedtime and Imuran daily. No IVIG. I had Plasmaphersis instead.
I feel like I take medicine all day long, but seems to work. It has been a year since the hospital.
Good luck
FREDH