great news, Deborah Ross Hawks has alerted us to their continued existence and advised their 'absence' is the product of losing their ability to use their arms to control the computer . . . hopefully alternatives will be found; one can use their feet with certain foot controls. There are also eye gaze systems many patients use.

Deborah and Devorah Schochet are the most recent pacing ALS patients to reach beyond the maximum upper bound for ALS survival.