Thanks Health girl. I had actually not come across this before. The link was helpful. I need to read a bit more on diagnosis. Am sure it's another hard one to diagnose. It mentioned MRI scans. I'd imagine they'd have to be quite specialised. I have MRIs on lower spine to monitor the A.S. My old rheum said I couldn't have ganglionopathy because the MRI of my lower spine didn't show it. It was only later that I realised he was talking nonsense and the type of MRI needed to show ganglion damage is so specialised they don't even do them here.