View Single Post
Old 01-14-2017, 08:20 AM
BirdOntheWire BirdOntheWire is offline
Junior Member
 
Join Date: Dec 2016
Posts: 9
5 yr Member
BirdOntheWire BirdOntheWire is offline
Junior Member
 
Join Date: Dec 2016
Posts: 9
5 yr Member
Default

Max,

I don't claim to be an expert, just someone who's been dealing with PCS myself for years, but your symptoms sound pretty standard for PCS. Sounds like this neurologist is not exactly a concussion specialist - if you can find a doctor who is, it should be enormously helpful, at least in reducing your health anxiety by reassuring you that what you are experiencing can be explained fully by the injury you had.

PCS doesn't necessarily have anything to do with bleeding in the brain. I'm surprised there are still neurologists out there (even trainees) who would say something like that. I have been treated for PCS for 3 years at one of the top hospitals in the US, and they diagnosed me with PCS, in no uncertain terms, before I'd even had a brain scan. (I didn't move back to my hometown and start seeing them until 6 weeks after the injury, and the ER doc I saw initially didn't think I needed a CT scan). I eventually had an MRI, but they told me that they fully expected it to turn out normal as PCS-causing damage isn't generally visible on scans (and it did indeed turn out normal). My point being, from my experience PCS is diagnosed based primarily on symptoms and/or measurable signs (reaction time, balance, etc.), not on brain scans, since a brain scan will often look normal for a PCS patient.

Good luck in your recovery.
BirdOntheWire is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
maxcjs0101 (01-15-2017)