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Old 01-16-2017, 09:09 AM
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ElaineD ElaineD is offline
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Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
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Hi Pogo,

No, I haven't had multiple day EEGs, only three one hour sleep deprived EEGs, and one over night sleep study which also involved EEG information collected. These tests were all in the past 3 years and all were completely negative.

However, my myoclonic seizures, both positive (the majority) and negative (the minority) which started last April are escalating rapidly. I am 74, and I'm pretty sure what I have is Primary Progressive Myoclonus of Aging.

I will be seeing a specialist in epilepsy on the 30th.

It is so wonderful to have people like you give me support, pogo. I have felt so weird and alone in this, to say the least. And not a little scared! Now I feel I have some measure of what is going on, and while it isn't all sorted out yet (if it ever will be), at least I am not afraid of what is coming next, at least with this condition.

Hugs, ElaineD
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