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Member
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Join Date: Nov 2013
Location: North Carolina
Posts: 293
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Member
Join Date: Nov 2013
Location: North Carolina
Posts: 293
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Primary progressive myoclonus of aging.
Hello, I am having myoclonic seizures, mostly positive (jerking of left arm, left side of body) and sometimes negative (sudden collapse to the floor). They started in April and are escalating. I even get myoclonic seizures of my eustachian tube which produces rapid clicking! Occasionally I wake up at night having seizures in my abdomen.
I am seeing a specialist in epilepsy on the 30th of January.
Writing this is more difficult that usual because my hands jump occasionally.
I have been prescribed 1500 mg of Depakote, since December 19, but it hasn't made any difference.
In the past three years I have had two one-hour sleep deprived EEGs and one overnight sleep study with EEG monitoring, all of which showed nothing unusual with brain activity.
So good to find this forum.
Hugs, ElaineD
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