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Old 01-20-2017, 08:07 AM
TexasTom TexasTom is offline
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Join Date: Jun 2015
Location: Austin, Texas
Posts: 112
8 yr Member
TexasTom TexasTom is offline
Member
 
Join Date: Jun 2015
Location: Austin, Texas
Posts: 112
8 yr Member
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Quote:
Originally Posted by bluesking View Post
Guys & gals - I am concerned - I don't have any idea how long
or far this will go on.....

Right now the electronic box in my chest is set at 3.3, I think

There has been a 'cycle' of sorts that results in substantial relief,
temporarily, each time the doc raises the voltage setting by .1
or .2. My concern is how long will this go on before I run out of
'room' (I understand that the overall limitation on the Medtronic
unit is 10.5).

I mean, at this rate, I'm going through a .4 - .5 increment each
month, or 2-3 weeks, just to get relief of the minimal sort.


Thanks -
David
David -- A great person to ask is Dr Okun over on the Parkinson.org forums

Attended a Medtronics meeting, and went over my settings, frequency, pulse width, impedance. Current settings I'm good for five years of battery life.

DBS Battery Estimator >> Center for Movement Disorders and Neurorestoration >> College of Medicine >> University of Florida

In 2010 is when the Activia Line came out. Titanium Case, so EMI is not an issue like earlier generations. So I can use arc welding and TIG welding. Ya!

Group meeting, so had chance to talk with someone else, retired M.D. who has Parkinsons and was also dealing with Gastroparesis Thankfully when he was first hospitalized a Neurologist realized it was due to Parkinsons, and he responded to Sinemet, saving him from a J tube surgery.

Scott -- sending you wishes for all the best.
__________________
Born 1958. Diagnosed PD 2014.
Meds Sept 2016: 5x daily: 2 - Sinemet 25/100 + 200mg Comtan; 50/200 ER Sinement (bedtime).
Oct 2016 - DBS - bilateral GPi (PD & Dystonia). Still a work in progress. (Reduced meds to 4 - 25/100 & 50/200 ER Bedtime daily; but need six months to see how DBS/Meds play out)
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"Thanks for this!" says:
soccertese (01-21-2017)