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Old 01-30-2017, 08:22 PM
SamG11 SamG11 is offline
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Join Date: Mar 2015
Location: Boston
Posts: 168
8 yr Member
SamG11 SamG11 is offline
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Join Date: Mar 2015
Location: Boston
Posts: 168
8 yr Member
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Quote:
Originally Posted by OhKay View Post
I was diagnosed based on my medical history, neurological exam, and an MRI of my brain and spinal cord after other conditions with similar symptoms were first ruled out. I have Progressive MS (which is rare), so my problems accumulated over time, beginning with escalating sensory and balance problems. I was diagnosed about 10 years after my symptoms began because the connection wasn't made until my tremor started getting worse and I started having more motor problems.

The majority of people who have MS have Relapsing Remitting MS, and have relapses/episodes where symptoms appear for a period of time and mostly go away when inflammation goes down. In addition to progressive disease, I also have relapses. As far as which symptoms stay, which disappear, and to what degree, is different for everybody.

I understand that you have questions, and I don't want to be insensitive, but I'm going to be completely honest: I'm not really comfortable with the "Do I have MS?" question for several reasons, but there is an MS forum here on NeuroTalk, where they are probably all more knowledgeable and up to date on their information and research than I am.

My best advice is to consider the symptoms you are having based on whether or not they are neurological vs. comparing them to a list of MS symptoms. If you are having neurological symptoms they are worth mentioning to the neurologist you were seeing for treatment of your epilepsy.

I REALLY hope you do not have MS.
Good luck Sam

Thanks OhKay for the information!

My symptoms are so complex, and sometimes I don't even believe I have any and feel its "all in my head" like everyone says.

Around the time I got my concussion (even before) I started having depersonalization as you know, and I have had numbness ever since. I also get a headache like pain in the back of my eyes when staring at a computer screen for more than 20 minutes. And from time to time I have weird head pain but I just brush it away..


I don't know, I'm a mess. Just like every other teenager. But If I did have MS (which I hope I don't) it would just make sense. That this was underlying this whole time and thats the reason why I have such odd symptoms
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"Thanks for this!" says:
bizi (01-30-2017), ger715 (01-31-2017), OhKay (02-02-2017)