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Old 01-31-2017, 09:32 PM
Hotfoot53 Hotfoot53 is offline
Junior Member
 
Join Date: Jan 2017
Location: Florida
Posts: 47
5 yr Member
Hotfoot53 Hotfoot53 is offline
Junior Member
 
Join Date: Jan 2017
Location: Florida
Posts: 47
5 yr Member
Default Hey Lili85 - sorry that you have all this together glad you found here

Quote:
Originally Posted by lili85 View Post
Hi all. I was just diagnosed with RSD 2.5wks ago & was told I'll never dance again. The injury is 2 years old and I've got a lot of damage. I just wanted to introduce myself without disturbing this thread & also have questions but I've read your responses...I learned from back surgery...no needles. For me, I'm to scared of needles now. No nerve blocks. There's research that states it's no more effective then pain medication, PT, etc... I'm sure it works for some...but not me. I finally gave in after 10 years & take pain medication. Do they have a ketamine pill? I heard about a ketamine topical? I can't do an infusion. I'm done with all needles! I've been given Lyrica. What I wanted after 15 years of chronic pain was more pain medicine! I changed my medicine TO A LOWER DOSE (before RSD) and filled it every 2 to 4 months. Then I broke my foot. My doctor of 12 years left the practice. My new doctor doesn't know me. Doesn't know RSD. He is awful (PCP, Same practice). I'd love to switch practices but it's hard to go and say "Hi, I'm opioid tolerant. Every medicine makes me sick but methadone. May I have two, please"? [ I'm over-the moon-happy that this Lyrica seems to work, but it also seems to dissipate quickly...does anyone notice that?] THANK YOU FOR BEING HERE
Lili85-
Wow- you've got a lot going on right now and I'm sorry that it's coming at you at once. I can empathize. We all have different stories, meds,and treatments.
I am currently having a really lousy time of things, and despite that, I remain optimistic because it lowers my pain level to keep optimistic.
I use the protect-0-meter app for iPad and "explain pain" methods to manage pain. It helps a lot and doesn't have a needle.
I hope you feel better soon, it's a lot to tackle all at once- so while I'm sorry you need to be here, you've found a group who understand like living with pain.
Hugs- Hotfoot53
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"Thanks for this!" says:
PurpleFoot721 (02-01-2017)