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Old 02-01-2017, 07:30 PM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by ElaineD View Post
I have profound PN in my legs, and SFN in my upper body.

The soles of my feet became very shiny, my toes are purple because the nerve damage made blood flow to my toes restricted. Hot water will turn my toes completely white.

Sometimes one foot will be ice cold and the other rosy pink and warm. My toes will turn white. Usually both feet are icy cold and have to wear sock to bed.

Your neuropathy of whatever kind is causing the problems you have.

I don't have these problems in my hands, by the way.

But I do have SFN in my hands, and fingers and finger tips.

I take Gabapentin and it stops the pain, burning, itching and stabbing sensation in my scalp, face, lips, tongue, neck, arms hands and fingers.

Best wishes! Hugs, ElaineD
Thanks Elaine - I was sure it must be Raynauds but what you describe is identical to mine including hot water, hands, fingertips and even my face. So I guess if yours is neuropathic rather than vascular then mine must be too. Although if I google pics of Raynauds in feet it's identical to how mine appears so maybe SFN causes secondary Raynauds? Do you also have a connective tissue disease? I couldn't remotely tolerate Gaberpentin or any of the nerve symptom treatments sadly.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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ger715 (02-02-2017)