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Originally Posted by NicoAvA
Hi boiler, hi madisongrrl!
Madisongrrl, that is a GREAT piece of information, thank you. I always suspected my issues to be immune related as it all started early after a first-stage of Lyme disease. It started Guillain Barré style. I push the doctors to consider auto-immune basis but the blood results do not seem to reveal anything. I mean come on, it must be from something!
The article you posted really makes my theory stronger. Thank you. How are you these days? How is going the antibiotics treatment?
All the best to you both.
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Parts of me are improving and parts of me are not. IV abx have been a great help, but it's also quite an undertaking with the cost, weekly bandage changes and weekly lab draws to monitor kidney and liver function.
I think the neurologist is not going to be of much help to you unless he wants to get you IVIG....which is highly unlikely. I've corresponded with a lot of people about their Lyme neuropathies. The ones that have had successfully recovered have treated their infections with a combo of herbs and antibiotics, got treated with IVIG and have used mild HBOT. One person I know had full body burning for 8 years and couldn't stand to even wear clothes. They didn't get IVIG, but bought a home mild HBOT unit. They are totally recovered now, but it took 60+ dives to get traction.