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Originally Posted by dreambeliever128
It's hard to say which Dr. is best at diagnosing RSD. A hand surgeon diagnosed mine after my TOS surgeon sent me to him. Some people have been diagnosed by pain Dr.s some by Neurologist. You just have to find a Dr. that knows about RSD. That's the hardest part.Ada
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A water therapist (physiotherapist) diagnosed me.
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my neuroligist the one i havent seen yet basically told me most likely you arent going to get any better we will have to see what you look like when you get here... There is no hope... for people with these types of issues.... Most people are forced to live with the pain... (thats the rough wordig...)
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What he failed to tell you, is that some people have gone into remission with RSD. It is different for everyone. The only constant is the pain. Even those who have gone into remission, acquired a new injury and the RSD came back. The greatest short term goal for you to make with yourself is: (repeat after me) I WILL GET MY PAIN UNDER CONTROL, I WILL HAVE FLARE UPS BUT MY LIFE AND MY SELF WORTH ARE NOT AFFECTED DUE TO THESE FLARE-UPS. I WILL BE ASSERTIVE WITH MY DOCTOR AND INFORM HIM THAT POSITIVE THINKING WILL GET ME FARTHER THAN NEGATIVE THINKING, AND THERE IS NOTHING WRONG WITH HAVING HOPES THAT THE NEXT TREATMENT WILL HELP.
We are always here, even 2 or 3 or 4 in the morning (sometimes I am one of those). Vent ALL you want and need.
Hugs - things will turn out okay. Please request a referral to a psychologist experienced with RSD.