Quote:
Originally Posted by Lemon
A quick update -
The first neurosurgeon didn't want to know and basically told me to get lost. Luckily his saving grace was that he offered for me to see one of his colleagues. A week later, the second neurosurgeon, who was much more thorough, actually agreed that my cysts were the cause of my symptoms. I could not stop smiling!
The happiness was short lived because the following day I felt my urine output slowed down completely. It is really low. And weight gain is considerable.
Not one health care provider seems to be in a hurry to do ANYTHING. Neurosurgeon is sending me for a urodynamics test and an electrical stimulating test on my legs... but these are weeks away. Meanwhile, I can barely function as a human being.
What am I meant to do in the meantime?
I really can't function at work. Worried I need to have time off / resign / might get given the sack.
Right now, there is no clear end in sight....
Neurosurgeon has not given a plan of action for once the next tests are done and he won't be operating because he is in his 70s.
I have sent off MRIs to Dr F. Does anyone know how long it takes for them to get back to you? It has been a couple of weeks now.
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Hi - I know it's been a long time since your post, but did you ever hear back? Ever get satisfactory treatment?
I have only just had Tarlov Cysts idenified in my cervical spine (C7/T1 T1/T2 T2/T3 and T5/T6 - they were only looking at my cervical and thoracic area in MRI)
I also have some other things going on (reverse lowest cervical spine curve, osteophyte complex at C6/7 irritating C6 nerve, requiring an injection.
plus some other stuff....
That's how I found your post and got to hoping you were able to get some relief after a horrible year!
Katherine in Australia x