Quote:
Originally Posted by Hotfoot53
Wow CRPSbe, three years without knowing what it was sounds nearly as tough as it spreading! That must have been so difficult for you. I'm glad your doc is on it and treating it well now. Best, Hotfoot53
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In those "almost" 3 years (1995-1998), it spread from knee to full legs + feet. It was too late to do anything.
Then after a number of years, in 2008 exactly it spread to my arms + hands. So yes, it does spread throughout the body, especially if it was left untreated a while.
Thankfully my doctor was "on it" when it spread to my arms. Before that other doctors weren't as... fast.
Sad, I know.