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Old 02-12-2017, 12:07 PM
JimJamJones JimJamJones is offline
Junior Member
 
Join Date: Jan 2016
Posts: 32
8 yr Member
JimJamJones JimJamJones is offline
Junior Member
 
Join Date: Jan 2016
Posts: 32
8 yr Member
Default future with sfpn

Hello everyone

So ive recently decided after lots and lots of 'perfectly healthy' tests, and thoughts of lyme and whatever else might be causing this, that i am back to the diagnosis of idiopathic non length dependent small fiber neuropathy.

What started in my fingertips and fingers in 2013 as burning skin pain from light touch has since moved into my left leg as mild cold paresthesia feelings in the toes up to the thigh and prickling underneath my foot when i walk - my right leg however, is not involved at all.

I used to think alcohol was a stressor for me but i now realise that it was just the poor sleep caused after alcohol consumption which causes the flares. Aside from a lack of sleep however (and also exercise) i cant find any other causes of symptom flaring for me e.g food intolerance, vitamin deficit.

So, now i am looking to the future and i want to ask those who have had sfn for longer than me how things panned out for you. Have your symptoms continued to get worse consistently? or did they plateau at some point, or maybe even improve?

The reason being is that ive just turned 31, and although my condition is reasonable now i understand that this is a slowly progressive condition with more pain the longer you have it. With the average western male life span being around 75 what state should i expect to be in 10/20/30/40 years from now, assuming im still around then??

Thanks,

Jim
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