I find, for those of us with a multitude of problems, often taking several medications, that it is very difficult to sort out what is happening at any given moment.

When I developed uncontrolled jerking in my left arm, and infrequent complete collapses to the floor (scary!) I went to my most recent medication and found that some of those symptoms (the jerking primarily) occurred in 4% of those taking that medication (Gabapentin).

So I decided to wean myself off the Gabapentin to see if it was causing my jerking movements. It was a terrible process, akin to withdrawal from benzodiazepines or alcohol, I read. I finally achieved withdrawal, only to be in horrible pain from my small fiber neuropathy.

However, eventually I found that the jerking and falling did NOT stop, and I went back on the Gabapentin. And I have my life back.

Now I am trying to put my head between my knees before I stand, since it is possible that my falling and jerking is related to interrupted blood flow within my brain (My carotids are fine, checked recently). The jerking isn't a big deal, but the complete collapse to the floor is a horror show.

I saw an epilepsy specialist and he has ruled out epilepsy, tho' I'm not completely sure he's right.

My point here is that we do a LOT of trial and error, and we must keep a daily log of our experiences, medications, sleep patterns, etc. And we must be patient since we are dealing with a data set of ONE (ourselves) and that means it is very hard to know exactly what is going on at any point in time.

My toes turn white in hot water, too, but I don't have the problem in my hands.
My feet are mostly purple, due to poor circulation from the nerve damage which decreases blood flow. my lower legs are atrophied due to the neuropathy.

And yet we continue, with a certain amount of hope mixed with realism.

Hugs, elained