Quote:
Originally Posted by CRPSbe
In those "almost" 3 years (1995-1998), it spread from knee to full legs + feet. It was too late to do anything.
Then after a number of years, in 2008 exactly it spread to my arms + hands. So yes, it does spread throughout the body, especially if it was left untreated a while.
Thankfully my doctor was "on it" when it spread to my arms. Before that other doctors weren't as... fast.
Sad, I know.
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Hi CRPSbe,
My heart goes out to you! There was so little known during the time that this started for you-- Now there is more awareness, hope and management techniques. You are clearly a resilient person with a strong spirit. I'm so glad they figured out enough to help you maintain your arm in okay position and provide you a quality of movement that allows you to do things. Praying you have more pain free days-- Hotfoot53