Hi Jim,

I'm now three years into this adventure. When it first started, I was in agony for about 8 months. I think sheer terror over not knowing what was wrong with was contributing. Stress (or excitement) of any flavor causes an immediate flare.

My symptoms have morphed over the three years, but the horrendous nerve pain in my legs and feet I had initially doesn't plague me much any longer. I have other very bizarre sensations full body, and when I flare I burn very unpleasantly, but at least the nerve pain has faded.

I'd rather not live like this for the rest of my life, but given that I don't have much choice, I guess I will. It could be a lot worse. I have not gone the gabapentin route yet, so I can still play that card at any time.

Stick around here and learn the "tricks of the trade." People are really helpful.

Janie