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Old 02-14-2017, 03:10 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by Hotfoot53 View Post
Hi CRPSbe,
My heart goes out to you! There was so little known during the time that this started for you-- Now there is more awareness, hope and management techniques. You are clearly a resilient person with a strong spirit. I'm so glad they figured out enough to help you maintain your arm in okay position and provide you a quality of movement that allows you to do things. Praying you have more pain free days-- Hotfoot53
Thanks so much! Means a lot to me.

It's both my arms that it spread to, especially the right. The right one was turning cold already. Thank goodness the medication (calcitonin) is the greatest thing since sliced bread for those arms, but I had to be patient (it took longer than the foreseen 3 month period). It really and truly helps, if you are patient enough with it (not for my legs unfortunately).

They are phasing the medication out of treatment plans more and more, I hear, though. Especially in university hospitals. But there aren't many alternatives for it, so they're basically stuck.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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"Thanks for this!" says:
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