Originally Posted by M4ggy

Hi Yolanda,

My name is Maggy and I am just going to preface this by saying that I do not have any good advice for you. I don't have a cyst in my brain, but I do know what it is like to have chronic, persistent symptoms and finally feel like I am reaching an answer but be told that this serious issue has no connection with my other symptoms.

Unnecessary backstory (in case my experience proves helpful to you): My serious issue is with the nerves surrounding my heart (sometimes they malfunction causing my heart to stop/slow and my bp to drop causing me to lose consciousness), but the rest of my symptoms fit more under the neurological category. My cardiologist told me that the heart issue didn't explain any of my other symptoms. He told me to "live my life." It was very discouraging because my quality of life is quite poor right now and I had really hoped that we were getting to some answers. My gp saw the bigger picture - how the heart issue connected with my other symptoms. I believe my cardiologist was too specialized to see the big picture. Perhaps you are experiencing a similar issue with the neurosurgeon. Maybe your gp can see the bigger picture and will work on getting you a second opinion or can give you more options?

Regardless, we joined about the same time, and I am glad you are on this site. It sounds like you have had a lot to deal with without any answers and I hope that someone takes your symptoms seriously and I hope that someone can offer medicine/therapies to help with those.