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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Vent away
I hate that you are having to go through this and have been for years and years.
I can't even get my mind around what your body and mind must have to go through everyday but I can understand the DH response to your 'new' doctor. 
When I was first dx'd (prior to any tests) with SFN by my awesome APRN she said "File for SSDI and go home and take care of those grandkids and enjoy yourself".......yea right !!!! Oh so Wrong !!!!
Boy was my husband excited......wife home and he could start a side business with me as his office manager or whatever.
Of course no one seemed to Understand the pain I was in. I could barely walk much less have enough mind left after the pain to manage anything.
I do have to say he finally came around to understanding how serious my problem was when my skin punch biopsy basically said: No A or C fibers left, dx Severe Small Fiber Neuropathy and I was awarded SSDI which is one of the hardest things I've ever been through with the pain I was in at the time.
Enough of that.
Having to change doctors or even seeing a new specialist is a horribly scary event to me. Most have been like your newest one........everything's ok on your tests, here take this go home and you'll be fine.
I wish I could be more helpful but wanted you to know I HEAR YOU !
Debi from Georgia
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