Sorry it's been so long.

I did see the new neuro, he is actually an MS specialist. He says there is no question, I definitely have MS. The reviews online about this doctor were right, he is great! I've seen him twice now. He actually does neurological exams every time I come in, my last neuro didn't. He's also keeping a closer eye on my labs and wants MRI's yearly, instead of just when I'm having a major issue.

He also got me set up with a neuromuscular neurologist to hopefully get a better understanding and handle on the periodic paralysis. So right now we are waiting on genetic testing to come back.

I also have a new primary care provider who is in close contact with all of my specialists. Since seeing her it does seem like a lot of things have been diagnosed. I've only switched to her almost two months ago but since then I have been diagnosed with Raynauds (unsure whether it's primary or secondary), Fibromyalgia and Interstitial Cystitis. She also did blood work for Lupus that came back negative. Although I'm not sure if I should ask her to dig deeper into that.

I'm extremely happy that my pcp keeps in close contact with my specialist and that the two different neuros keep each other informed because they work out of the same hospital.

From the appointments my previous doctors had got started I was sent to a urologist who wants to test for neurogenic bladder.

It has been several months of major up and down swings. The last week has been very bad again. But I'm starting to have a little more energy.

I get to go on my yearly sort-of-vacation with my husband next week. He has to go to a conference for work in a resort town a few hours from here. So his work pays for the room and I get to go with him. He has to go to classes and conferences all day but for the weekend before and then all evening each day we get to just relax together!

Thank you to everyone for all of your insight! Oh and the information about me getting the wrong labs and not having a bracelet did get to the administrator and as far as I know three people were fired. It's not that I wanted anyone fired (except maybe that doctor) but those were major mistakes and I'm glad somebody actually did something about it.