All I can say is ow and wow!

I wish I had advise for you, I don't. But just wanted to say I hear your venting and I'm sorry for all you're going through.

I do have to travel at least two hours for my specialists because of where I live and recently switched to one that is about another 20 minutes further away. Honestly, it was completely worth it.

I fully understand what you mean about doctors, if you have one that you like and you can still get to if you travel further, I may be different than you, but I would travel.

A great doctor is so hard to find! I do have to say though that my three newest doctors have really broke the mold. They are all young, and two of them are male, but they are so compassionate and understanding and really tell it like it is. They are also completely on-board with the understanding that once you have one autoimmune disease you are more likely to get a whole list of them. So they do exist, they're just very hard to find. I have definitely had my share of the jerks.

I think your hubby is just so willing to let this doctor put the blinders on him because he wants so badly for it to be true. If he's anything like my husband, than seeing you go through so much misery and not being able to do the things you love absolutely tears him up inside. One of the biggest things to make my husband cry (though he tries to hide it from me) is anything that brings me to tears that he can't fix. Because I'm not like you in my response to pain, I do break down and cry when it gets to be too much. Not necessarily that the pain gets worse, more that I have dealt with a high level for so long that I break down for a little bit.

Hopefully you find the right decision as far as what doctor to go to. I also hope you find a way to make your husband understand the situation.

Best of luck!