[QUOTE=AnnieB3;1237551]Jane, If it were me, I'd stick to the plan in place. You may not even need to see a N-O. Being seen right away, especially in your current condition (meaning not stable) is the best plan. Do you live close to or in Florida?

Do you know the MG specialist you are going to see? That's the one point that might concern me. If they are just tossing you to a MG clinic, where a resident or a "regular" neurologist were to see you, that's not what you need. You need a MG expert to help you. Make sure you know WHO they are referring you to. You can easily research the reputation of that doctor once you know.

It just isn't enough to go to a MG clinic.

Hope that helps.

Annie[/QUOTE
Thanks so much Annie. I've probably really messed up things here, but I want answers SOON. The EMG that was done today did not show MG. The Neurologist said it didn't surprise him that they were often negative. What the heck? Why do the test? Makes no sense to me. Now he mentions Dr. Michael Rivner at the Augusta Medical College where they recently discovered the two new antibodies. Who knows? So I am letting my PCP begin the referral process to Dr. Weiss at the University of South Fl and the Neuro initiate the referral to Augusta Medical. I'll see which happens first and which looks the best and then cancel the other appointment. I have waited months and months for appointments over the last year and a half - appointments that led to nowhere. My PCP seems to be very knowledgeable about mg. Calls to check on me sometimes twice a day. She told me to notify of her immediately of more weakness and we would set up more infusions until we can get an appointment. This hamster wheel spinning is driving me bonkers. OK...vent over.