Quote:
Originally Posted by JoannaP79
Hi Teachersmom, are you under the care of a neuro or Neuromuscular person. I was looking at the various myositis' as a possible cause of my weakness and atrophy but don't have anything pointing to that blood wise. With all the issues you have described including the autonomic issues I'm hoping someone is overseeing it all to try understand the underlying cause.
If you have other symptoms pointing to a myositis I'd seek further testing to confirm.
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Yes, my neuro is one of the best for myositis and I see him for yearly check ups. At my last appointment, he felt that my summer issues pointed to the antibody being active again. However, by the time I had my visit, I was doing better. He said that I didn't need to repeat testing until I am experiencing weakness again, which makes sense to me. I go back in July. I will tell him about my tendon at that time.