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Old 07-14-2007, 04:20 PM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Cindy, so sorry you have to be the one to deal with this one, but someone's gotta do it!...it may as well be you, sort of like a new mission

I am dealing with SS every week. They continue to send me huge envelopes full of crap in the mail even though I have asked them to stop. They have called and sent little surveys with free gifts attached to them asking questions that are NONE of their business.

The money consumers pay for the drug that they peddle is going to wasteful trash and harrassment of the consumers themselves.

I have a real beef about privacy and how hard it is to opt out of the train once you decide to get off. The policy and addresses for opt out programs are well hidden in PILES of pages of information. In most cases opt out programs usually require that you write to them to opt out instead of calling or emailing.

To think that SS called/faxed/wrote to ANYONE'S Dr. without the patient requesting it is an outrage. To report PERSONAL information to that Dr. without the patient requesting it is bordering on criminal and if they are getting away with it through some marketing clause then that loophole needs to be closed NOW!

Go after them like a junk yard dog Cin!!!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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