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Old 03-12-2017, 05:31 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by ahlevy View Post
Last weekend I fell and bruised my right shin badly. This triggered a bad flare up. i tried going up to 300 mg of Neurotin 2x day, but with my current mediaction (Luvox, Latuda, Wellbutrin, Clairnex, Advair, Ativan, and Benadryl) It makes me dizzy and I stumble around. Today I surrendered and got crutches. Since my flare up began i've being feeling CRPS type pain in my left ankle. i am about 90% sure it's spread to my ankle. I am thinking of asking my psychiatrist for a prescription for a wheelchair. I'm a sophomore in college. I don't want to limit myself, yet I have to because of the pain. i think a wheelchair would help me go to class without almost passing out because of pain. I think I can learn to live with the pain as long as don't walk farther from my bathroom. Any more it hurts too bad for me to stand. Are there treatment options that would work 8 years post diagnosis? Has a wheelchair helped you?
You're on a lot of medications already. Ask your pharmacist & doctor that they can co-exist peacefully.

There may be other options out there for you. What does your pain management doc say, and propose?

Best of luck to you! I hope you go into remission again.

In my case, I was almost 3 years into it when they first diagnosed me and started to treat it. A lot of orthopedic specialists just had no clue. It was finally my GP who referred me to a neurologist who diagnosed me. By then, sadly, it was too late and it was "embedded" into my limbs so hard I have a disability because of it. This has been my last 21, almost 22 years.

My hands and arms are fine as long as they get treated, but the muscles get supertired fast (like for instance with typing).
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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