Erin, Sorry to hear that.

What has your activity level been like? How MG does is directly related to how much we do, no matter what medications we are on! And some people don't do as well on IVIG as plasma (vice versa). Creating the best treatment protocol takes time. If they aren't willing to counteract what is causing MG (via immunosuppression), how do they expect you to be better?

Are only your legs and chest wall muscles weak, or other areas? How hot is it right now in CA? Have you been outside in the sun?

When was the last time they checked your antibodies?

Do you sleep well? A lack of sleep can make MG worse. Do you tense up muscles while you are sitting? Are you talking a lot? Yeah, socializing is one of the activities that uses a bunch of muscles groups at once and can make MG much worse. Do you take naps during the day? You could see if that helps.

Whatever is going on should prompt you to see your neuro. A good clinical exam is invaluable.

The last thing you need is to end up in a crisis. Please seek out help right away.


Annie