Quote:
Originally Posted by chinderm
Hi,
My name is Carole. My husband has peripheral neuropathy. He has been
dealing with this for about the past 9 months. He is under dr. care and has also had a 2nd opinion (which both drs. agree on the neuropathy and its treatment. He is on SO MUCH MEDICATION it seems ridiculous to me.
Gabitril, gabapentin, mirtazapine, oxycodon, and the list goes on.
I know that all of this medication is screwing up not only his body, but also
his mind and his mood. He is still holding down his job, but of course he
struggle- because when he is in pain- he takes his pills and then he gets a
bit woozy- but then after 1/2 he seems better.
Can anyone out there give me any advise or tell me if another treatment is
possible. Im at the point where I just want to throw every pill he takes away.
I am trying to be as direct to the point as I can and I have been searching
and reading up on this and I would like to have some info from anyone who is
or has been dealing with this.
I would appreciate any info someone can give me.
Thank you so much.
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Hi Carole:
I don't know where to start or how to be brief. I am the victim of polyneuropathy. I'm now virtually disabled (feet and hands) because it took so long to get properly diagnosed...wasted to much time with GP's. I'm very familiar with the medication your husband is taking...all going nowhere. I'm not a doctor, but would suggest that he get a referral to a good hemotologist and get an electrofluorescence analyses done on his blood to check for protein-bearing antibodies released by his immune system or bone marrow. It's called anti-MAG (Myelin Associated Glycoprotein). It is progressive and usually irreversible. I was diagnosed with Non-Hodgkin's Lymphoma and have been taking chemotherapy for over 2 years. My only success was being able to halt it.....too late, but better than falling further down the sewer.
I wonder if you can get in touch with me if you have questions. Ryan Good luck.