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Member
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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Member
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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I think I had pamidronate, if I remember correctly (or was it alendronate?) - I can't remember. In IV form, 5 consecutive days - hospital stay, many many many years ago. It didn't do a thing for my CRPS as a whole. My legs were too far gone.
Normally you get this treatment once a week, but I was in such bad shape that they made it into 5 consecutive days of treatment. And they let it drip for 4H otherwise the side-effects would be too bad.
It was used in Belgium fairly often at the time (now I'm not so sure), and I had to consult a rheumatologist for it. I doubt pain specialists do this protocol.
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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