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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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I'm a past chemo patient :)
Nice to meet you and welcome to the group !
I got more help here when my small fiber neuropathy knocked me down than with any doctor. Great group of people with a lot more knowledge than I have !
I received 6 chemo treatments of taxol/carbo ending in March 2013. A month after that I could barely walk without severe pain in my feet. My oncologist wrote me off and said it was not the chemo. I did experience some very small tingling issues during chemo but no pain.
Went to my PCP in May 2013 and she immediately said neuropathy and started all the blood tests, x-rays, nerve conduction studies and the electro thing on the limbs.
All tests blood tests were normal.
X-rays showed issues in my spine but specialist determined no compression that would lead to neuropathy.
Nerve conduction and electro normal except for carpet tunnel showing in right wrist.
I have to be honest.....I had to be my own advocate and chase the reason down. Started with neurologist who started me on gabapentin and I was still on the Norco my PCP prescribed. Which the neuro didn't like but never told me not to take it.
Neurologist said no to biopsy at the time and wanted to wait.
Well I didn't want to wait and had already seen an ankle/foot doctor. Called his office and asked for skin punch biopsy.
Done in Sept and was positive for severe small fiber neuropathy.
So I pushed and had my dx within 5 months. Was advised to see a pain management specialist and finally gave in in Sept/Oct 2014.
Still with pain management.
Still in pain but nothing like 2013.
I also changed oncologist because I felt mine was only trying to cover his you know what. Heck I wasn't blaming him in any way I just needed help and he did not provide that for me.
My new oncologist is wonderful and wish I had used him in the first place.
Hindsight is 20/20 in so many situations.
My story doesn't mean this will be your path.
Everyone is different and I will pray that yours gets better and better every week until you have no more pain and can get on with your life.
Please keep us posted. We care 
Debi from Georgia
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