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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Hey there Ragtop !
Quote:
Originally Posted by Ragtop262
Hi Debi,
I also have had significant sinus issues since a toboggan vs tree accident when I was in high school....... (After surgery to repair the busted up nose, it looks fine from the outside - but not so much on the inside.) I haven't had much luck with any of the medications, so generally just inhale steam from a rag soaked in hot water when the occasional sinus headaches come on. That usually opens things up for me.
As for my PN, things are still pretty stable. I had an acute onset of SFN symptoms in July of 2014, but things stabilized and haven't really gotten any worse in over two years now. Just praying it stays that way.
I've been doing a very slow taper in my gabapentin dosage over the past several months, and my symptoms haven't really gotten any worse. I've gone from 1800 mg/day to 300 mg/day - and will hopefully be able to get completely off over the next several weeks. But having been on and off of gabapentin before, I know that final step down to zero can be the hardest.
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Thanks for the update....I want to hear the good and the bad !
You know.......I had a sled 'wreck' when I was about 6....in Alaska and my brother (7 years old then me) took me to the hill everyone was coming down. One time I beat him to the top of the hill and down that hill I went all by myself ! I can actually remember every detail of that ride.......hit a wood stump head on with my forehead and then flipped over and hit my head on a house ! lol
I still remember the look on my mom's face when she opened the door and I was in my brothers arms with blood in my eyes !
Dang....does that have anything to do with my sinus issues now ?
A teenager with nose surgery....not cool was it ?
Glad to hear your SFN is stable. I could only go to 1800 mg a day on the gabapentin and that's where I'm still at.
That's great that you are able to reduce it without the SFN acting up. I knew mine was helping when I had to go off of it to try something else. Was on the new med 3 weeks....off 3 weeks before going back on the gabapentin and it was horrible. Pain was constant until I got back on the gabapentin.
The only good was that at least I knew the gabapentin was working !
I think it's great you're at 300 mg a day. Do you take that at night before bed ? Just curious. I take 600 mg 3 times a day. And I found out I can't use the 600 mg tablet......I have to use the 300 mg capsules.
Keep in touch my friend 
Debi
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