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Old 03-25-2017, 09:18 PM
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
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Quote:
Originally Posted by janieg View Post
I'm clear on SCN9A, SCN10A, and SCN11A.

I have variants, but they're all currently believed to be benign.

I don't know whether to be happy or sad.
I can understand. I had mixed emotions when I got the negative results for SCN9a. Felt like I was back to square one and it is all so time consuming. I don't think there is much they can do for hereditary causes so maybe it is a blessing in disguise.

I was just reading about SFN and celiac disease. Often it is the presenting symptom for celiac. Have you been tested for that? I had a saliva test for gliadin which came back negative but I don't know if that is sufficient to rule out CD. I will ask during my appointment in May.

We must continue to march forward!
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