Quote:
Originally Posted by KATO
I am currently waiting on blood test results. I did have a punch biopsy. And was diagnosed with small fiber neuropathy as well as autonomic neuropathy. This so many strange things have just been going on these last few weeks that are new to me and I don't understand. He's tested me for pretty much every autoimmune disease there is from what I can understand them the test but I've researched. I hope to get my blood results back very soon so I'll have an answer. My rheumatologist diagnosed me with lupus and fibromyalgia period but now he is not sure where weather I have fibromyalgia or lupus. So anybody's guess I guess that's what's going on. Thank you for the reply.
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ok, I was going to say it sounds exactly like what I have, but don't like to put my diagnosis on anyone... but there it is. I have dysautonomia and sfn, and have everyone of those symptoms. They are extremely painful and scary. My only advice is to not panic, try to understand that it is from sick nerves. Being upset, nervous, living in fear... is so terrible for the poor nerves. It makes everything worse. Until they figure out how to put it in remission, or the autoimmune attack calms down we have no options but to manage the symptoms. I know how upsetting it is. One day at a time. Hopefully they will be able to settle it down if they get conclusive blood work and will treat the autoimmune part. Otherwise they can only offer meds to manage the symptoms.