Hi Joanna,

Yes, it is so difficult to have chronic conditions, life changing, and sometimes beyond current medical science to diagnose/treat.

The constant tests and questions are exhausting in themselves. Be sure to keep a record of your daily health (I do this first thing in the morning, with a reference to yesterday, of course). It often helps to take someone with you to medical appointments, as well.

I highly suggest How to Be Sick, by Toni Bernhard, a successful attorney and law school professor who was laid low by a mysterious virus that never left her body. It is really a prescription for living with disability.

Keep us all posted on your journey.

Hugs, ElaineD