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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Hey Joanna :)
I have SFN but never had the spinal tap so I can't give you an opinion on that. I had to chase my own dx and finally got it with a skin punch biopsy. I guess if that had not been positive I might have done the spinal tap.
I've had this going on 4 years.....I still can't get the 'pacing myself' together. When I feel halfway decent I want to do so much around the house....forget about going out.....I'm home 99% of the time. Frustrating and depressing that my life has turned out like this. I'm only 54 and without the help of my grown children and grandkids I have no idea where I would be.
I too get upset seeing what other people are able to do. I try not to but it's really hard sometimes. I try to pull myself up by my bootstraps but it's not always easy to do.
Can I ask how old your son is ? God love your heart, I don't have all the symptoms you have but I know you are a strong woman trying to raise that son of yours !
But......we do wake up everyday and get to see the sun shining in. That has to mean something 
We've got to support each other through the good and the bad.
We're here.....such good people on here always ready to reach out with the right words to help me.
Keep us posted on your results of the muscle biopsy.
Debi from Georgia
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