Originally Posted by Summerfun

You are an inspiration Healthgirl and you motivate me to keep pushing. It has been just about 3 years for me since the SFN started and I too am still idiopathic. I have seen the neuromuscular neurologist and the rheumatologist and just starting with the geneticist (only because I shared my father's history not because the question(s) were asked). I don't expect to find a cure but I would very much like to understand what the heck happened to set this horrible disease off. The list of meds you shared is dead on and how sad is that. It seems the doctors go to a "procedure manual" and follow instructions. We have to rely on the researchers who have a genuine interest in figuring out how things work. I applaud your persistence and your enthusiasm for life regardless of what it deals you. Your family is lucky to have you!