Quote:
Originally Posted by ElaineD
Hi Joanna,
Yes, it is so difficult to have chronic conditions, life changing, and sometimes beyond current medical science to diagnose/treat.
The constant tests and questions are exhausting in themselves. Be sure to keep a record of your daily health (I do this first thing in the morning, with a reference to yesterday, of course). It often helps to take someone with you to medical appointments, as well.
I highly suggest How to Be Sick, by Toni Bernhard, a successful attorney and law school professor who was laid low by a mysterious virus that never left her body. It is really a prescription for living with disability.
Keep us all posted on your journey.
Hugs, ElaineD
|
Thanks Elaine, I saw that book on my audible recommendation list. If you think it's worth a try I will definitely look to get it. I think you are right in that some level of acceptance is really important and this book title is kind of doing that. I've felt such hope in searching for treatments a d therefore the correct diagnosis. More recently I have realised I have to accept more as the roads virtually at a dead end. Thanks Elaine x